Show simple item record

dc.contributor.authorCollett, J
dc.contributor.authorLawrie, S
dc.contributor.authorBromley, S
dc.contributor.authorHarling, P
dc.contributor.authorReed, A
dc.contributor.authorBrusco, N
dc.contributor.authorCoe, S
dc.contributor.authorCoebergh, J
dc.contributor.authorCarroll, C
dc.contributor.authorRoberts, HC
dc.contributor.authorHu, MT
dc.contributor.authorDawes, H
dc.date.accessioned2023-11-24T09:42:13Z
dc.date.available2023-11-24T09:42:13Z
dc.date.issued2023-11-09
dc.identifier.issn0269-2155
dc.identifier.issn1477-0873
dc.identifier.urihttps://pearl.plymouth.ac.uk/handle/10026.1/21695
dc.description.abstract

ObjectiveA diagnosis of Parkinson's often leads to uncertainty about the future and loss of perceived control. Peer support may offer a means to address these concerns and promote self-management. DesignA programme evaluation of the feasibility and potential effects of ‘First Steps’, utilising a pragmatic step wedge approach. Comparing First Steps (intervention) to (control) conditions. Setting: In the community at four sites in southern England. Participants: Newly diagnosed (≤ 12months) people with Parkinson's. Intervention: First Steps was a 2-day peer-conceived, developed and led intervention to support self-management. Main measures: At 0, 12 and 24 weeks anxiety and depression (Hospital, Anxiety and Depression Scale, HADS), daily functioning (World Health Organisation Disability Assessment Schedule, WHODAS), physical activity, quality of life (EQ5D), carer strain and service utilisation were assessed. ResultsBetween February 2018 and July 2019, 36 participants were enrolled into intervention and 21 to control conditions, all were included in statistical analysis. Lost to follow up was n = 1 (intervention) and n = 1 adverse event was reported (control, unrelated). Of the 36 allocated to the intervention n = 22 participants completed both days of First Steps during the study period. Completion of outcome measures was >95% at 24 weeks. Small effects favouring the intervention were found for HADS (odds ratio (OR) = 2.06, 95% confidence interval (CI) 0.24:17.84), Carer Strain Index (OR = 2.22, 95% CI 0.5:9.76) and vigorous (d = 0.42, 95% CI −0.12:0.97) and total physical activity (d = 0.41, 95% CI −0.13:0.95). EQ5D, WHOSDAS and service utilisation, was similar between groups. ConclusionsFirst Steps was feasible and safe and we found potential to benefit physical activity, mental health and carer strain. Further research with longer-term follow up is warranted.

dc.format.extent403-413
dc.format.mediumPrint-Electronic
dc.languageen
dc.publisherSAGE Publications
dc.subjectCarers
dc.subjectParkinson’s disease
dc.subjectpeer support
dc.subjectphysical activity
dc.subjectself-management
dc.subjectHumans
dc.subjectSelf-Management
dc.subjectQuality of Life
dc.subjectProgram Evaluation
dc.subjectParkinson Disease
dc.subjectPhysical Therapy Modalities
dc.titleA programme evaluation of ‘First Steps’: A peer-conceived, developed and led self-management intervention for people after a Parkinson's diagnosis
dc.typejournal-article
dc.typeJournal Article
plymouth.author-urlhttps://www.ncbi.nlm.nih.gov/pubmed/37941369
plymouth.issue3
plymouth.volume38
plymouth.publisher-urlhttp://dx.doi.org/10.1177/02692155231210969
plymouth.publication-statusPublished
plymouth.journalClinical Rehabilitation
dc.identifier.doi10.1177/02692155231210969
plymouth.organisational-group|Plymouth
plymouth.organisational-group|Plymouth|Research Groups
plymouth.organisational-group|Plymouth|Faculty of Health
plymouth.organisational-group|Plymouth|Research Groups|Institute of Translational and Stratified Medicine (ITSMED)
plymouth.organisational-group|Plymouth|Research Groups|Institute of Translational and Stratified Medicine (ITSMED)|CCT&PS
plymouth.organisational-group|Plymouth|REF 2021 Researchers by UoA
plymouth.organisational-group|Plymouth|Users by role
plymouth.organisational-group|Plymouth|Users by role|Academics
plymouth.organisational-group|Plymouth|REF 2021 Researchers by UoA|UoA03 Allied Health Professions, Dentistry, Nursing and Pharmacy
plymouth.organisational-group|Plymouth|Faculty of Health|Peninsula Medical School
plymouth.organisational-group|Plymouth|Research Groups|FoH - Community and Primary Care
plymouth.organisational-group|Plymouth|Research Groups|FoH - Applied Parkinson's Research
plymouth.organisational-group|Plymouth|Research Groups|Plymouth Institute of Health and Care Research (PIHR)
plymouth.organisational-group|Plymouth|REF 2028 Researchers by UoA
plymouth.organisational-group|Plymouth|REF 2028 Researchers by UoA|UoA03 Allied Health Professions, Dentistry, Nursing and Pharmacy
dc.publisher.placeEngland
dcterms.dateAccepted2023-10-13
dc.date.updated2023-11-24T09:42:01Z
dc.rights.embargodate2023-11-25
dc.identifier.eissn1477-0873
rioxxterms.versionofrecord10.1177/02692155231210969


Files in this item

Thumbnail
Thumbnail

This item appears in the following Collection(s)

Show simple item record


All items in PEARL are protected by copyright law.
Author manuscripts deposited to comply with open access mandates are made available in accordance with publisher policies. Please cite only the published version using the details provided on the item record or document. In the absence of an open licence (e.g. Creative Commons), permissions for further reuse of content should be sought from the publisher or author.
Theme by 
Atmire NV