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dc.contributor.authorHansford, L
dc.contributor.authorWyatt, K
dc.contributor.authorCreanor, S
dc.contributor.authorDavies, J
dc.contributor.authorHorne, G
dc.contributor.authorLynn, A
dc.contributor.authorMcCready, S
dc.contributor.authorPearce, S
dc.contributor.authorPeeler, A
dc.contributor.authorRhys, A
dc.contributor.authorSallnow, L
dc.contributor.authorHarding, R
dc.date.accessioned2023-12-20T11:18:55Z
dc.date.available2023-12-20T11:18:55Z
dc.date.issued2023-01
dc.identifier.issn2632-3524
dc.identifier.issn2632-3524
dc.identifier.otherARTN 26323524231212514
dc.identifier.urihttps://pearl.plymouth.ac.uk/handle/10026.1/21823
dc.description.abstract

Background: England’s South-west Peninsula is largely rural, has a high proportion of over 65s, and has areas of rural and coastal deprivation. Rural and low-income populations face inequities at end of life and little is known about the support needs of rural, coastal and low-income communities. Objectives: To understand how to foster community support for dying and grieving well, a regional, multi-sectoral research partnership developed a community engagement programme to explore experiences of seeking support, issues important to people and the community support they valued. This article shares what people told us about the role that communities can play at end of life, and reflects on learning from our process of engaging communities in conversations about dying. Design and methods: A programme of varied community engagement which included: the use of the ‘Departure Lounge’ installation and four focus groups with interested individuals in a range of community settings; the co-creation of a ‘Community Conversation’ toolkit to facilitate conversations with individuals with experience of end-of-life care and their carers with Community Builders; a focus group with Community Builders and a storytelling project with three bereaved individuals. Results: People valued community support at the end of life or in bereavement that offered connection with others, peer support without judgement, responded to their individual needs and helped them to access services. Creative methods of engagement show potential to help researchers and practitioners better understand the needs and priorities of underserved populations. Collaboration with existing community groups was key to engagement, and contextual factors influenced levels of engagement. Conclusion: Local community organizations are well placed to support people at end of life. This work highlighted the potential for partnership with palliative care and bereavement organizations, who could offer opportunities to develop people’s knowledge and skills, and together generate sustainable solutions to meet local need.

dc.format.extent26323524231212514-
dc.format.mediumElectronic-eCollection
dc.languageen
dc.publisherSAGE Publications
dc.subjectcoastal
dc.subjectcommunity engagement
dc.subjectend-of-life
dc.subjectlow-income
dc.subjectpalliative care
dc.subjectpublic health
dc.subjectrural
dc.titleEngaging with communities in rural, coastal and low-income areas to understand barriers to palliative care and bereavement support: reflections on a community engagement programme in South-west England
dc.typejournal-article
dc.typeArticle
plymouth.author-urlhttps://www.ncbi.nlm.nih.gov/pubmed/38044933
plymouth.volume17
plymouth.publisher-urlhttp://dx.doi.org/10.1177/26323524231212514
plymouth.publication-statusPublished
plymouth.journalPalliative Care and Social Practice
dc.identifier.doi10.1177/26323524231212514
plymouth.organisational-group|Plymouth
plymouth.organisational-group|Plymouth|Research Groups
plymouth.organisational-group|Plymouth|Faculty of Health
plymouth.organisational-group|Plymouth|Faculty of Health|School of Nursing and Midwifery
plymouth.organisational-group|Plymouth|REF 2021 Researchers by UoA
plymouth.organisational-group|Plymouth|Users by role
plymouth.organisational-group|Plymouth|Users by role|Academics
plymouth.organisational-group|Plymouth|REF 2021 Researchers by UoA|UoA03 Allied Health Professions, Dentistry, Nursing and Pharmacy
plymouth.organisational-group|Plymouth|Research Groups|Plymouth Institute of Health and Care Research (PIHR)
plymouth.organisational-group|Plymouth|REF 2028 Researchers by UoA
plymouth.organisational-group|Plymouth|REF 2028 Researchers by UoA|UoA03 Allied Health Professions, Dentistry, Nursing and Pharmacy
dc.publisher.placeUnited States
dcterms.dateAccepted2023-10-19
dc.date.updated2023-12-20T11:18:40Z
dc.rights.embargodate2023-12-21
dc.identifier.eissn2632-3524
rioxxterms.versionofrecord10.1177/26323524231212514


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