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dc.contributor.authorKehagia, AA
dc.contributor.authorChowienczyk, S
dc.contributor.authorHelena van Velthoven, M
dc.contributor.authorKing, E
dc.contributor.authorNorth, T
dc.contributor.authorShenton, D
dc.contributor.authorAbraham, J
dc.contributor.authorLangley, J
dc.contributor.authorPartridge, R
dc.contributor.authorAnkeny, U
dc.contributor.authorGorst, T
dc.contributor.authorEdwards, E
dc.contributor.authorWhipps, S
dc.contributor.authorBatup, M
dc.contributor.authorRideout, J
dc.contributor.authorSwabey, M
dc.contributor.authorInches, J
dc.contributor.authorBentley, S
dc.contributor.authorGilbert, G
dc.contributor.authorCarroll, C
dc.date.accessioned2024-01-25T13:50:43Z
dc.date.available2024-01-25T13:50:43Z
dc.date.issued2024-01-23
dc.identifier.issn1877-7171
dc.identifier.issn1877-718X
dc.identifier.urihttps://pearl.plymouth.ac.uk/handle/10026.1/21968
dc.description.abstract

Background: There is significant unmet need for effective and efficiently delivered care for people with Parkinson’s disease (PwP). We undertook a service improvement initiative to co-develop and implement a new care pathway, Home Based Care (HBC), based on supported self-management, remote monitoring and the ability to trigger a healthcare contact when needed. Objective: To evaluate feasibility, acceptability and safety of Home Based Care. Methods: We evaluated data from the first 100 patients on HBC for 6 months. Patient monitoring, performed at baseline and 6-monthly, comprised motor (MDS-UPDRS II and accelerometer), non-motor (NMSQ, PDSS-2, HADS) and quality of life (PDQ) measures. Care quality was audited against Parkinson’s UK national audit standards. Process measures captured feasibility. Acceptability was assessed using a mixed-methods approach comprising questionnaires and semi-structured interviews. Results: Between October 2019 and January 2021, 108 PwP were enrolled onto HBC, with data from 100 being available at 6 months. Over 90% of all questionnaires were returned, 97% were complete or had < 3 missing items. Reporting and communications occurred within agreed timeframes. Compared with baseline, after 6m on HBC, PD symptoms were stable; more PwP felt listened to (90% vs. 79%) and able to seek help (79% vs. 68%). HBC met 93% of national audit criteria. Key themes from the interviews included autonomy and empowerment. Conclusions: We have demonstrated acceptability, feasibility and safety of our novel remotely delivered Parkinson’s care pathway. Ensuring scalability will widen its reach and realize its benefits for underserved communities, enabling formal comparisons with standard care and cost-effectiveness evaluation.

dc.format.extent197-208
dc.format.mediumPrint
dc.languageeng
dc.publisherIOS Press
dc.subjectSelf-management
dc.subjectParkinson's disease
dc.subjectdigital health technology
dc.subjectsensor
dc.subjectremote management
dc.titleReal-World Evaluation of the Feasibility, Acceptability and Safety of a Remote, Self-Management Parkinson’s Disease Care Pathway: A Healthcare Improvement Initiative
dc.typejournal-article
dc.typeArticle
plymouth.author-urlhttps://www.ncbi.nlm.nih.gov/pubmed/38250784
plymouth.issue1
plymouth.volume14
plymouth.publisher-urlhttp://dx.doi.org/10.3233/jpd-230205
plymouth.publication-statusPublished
plymouth.journalJournal of Parkinson's Disease
dc.identifier.doi10.3233/jpd-230205
plymouth.organisational-group|Plymouth
plymouth.organisational-group|Plymouth|Research Groups
plymouth.organisational-group|Plymouth|Faculty of Health
plymouth.organisational-group|Plymouth|Research Groups|Institute of Translational and Stratified Medicine (ITSMED)
plymouth.organisational-group|Plymouth|Research Groups|Institute of Translational and Stratified Medicine (ITSMED)|CCT&PS
plymouth.organisational-group|Plymouth|REF 2021 Researchers by UoA
plymouth.organisational-group|Plymouth|Users by role
plymouth.organisational-group|Plymouth|Users by role|Academics
plymouth.organisational-group|Plymouth|REF 2021 Researchers by UoA|UoA03 Allied Health Professions, Dentistry, Nursing and Pharmacy
plymouth.organisational-group|Plymouth|Faculty of Health|Peninsula Medical School
plymouth.organisational-group|Plymouth|Research Groups|FoH - Community and Primary Care
plymouth.organisational-group|Plymouth|Research Groups|FoH - Applied Parkinson's Research
plymouth.organisational-group|Plymouth|Research Groups|Plymouth Institute of Health and Care Research (PIHR)
plymouth.organisational-group|Plymouth|REF 2028 Researchers by UoA
plymouth.organisational-group|Plymouth|REF 2028 Researchers by UoA|UoA03 Allied Health Professions, Dentistry, Nursing and Pharmacy
dc.publisher.placeNetherlands
dcterms.dateAccepted2023-12-13
dc.date.updated2024-01-25T13:50:43Z
dc.rights.embargodate2024-1-27
dc.identifier.eissn1877-718X
rioxxterms.versionofrecord10.3233/jpd-230205


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