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dc.contributor.authorPoh, P-F
dc.contributor.authorCarey, MC
dc.contributor.authorManning, JC
dc.contributor.authorLee, JH
dc.contributor.authorLatour, JM
dc.date.accessioned2024-02-02T15:34:56Z
dc.date.available2024-02-02T15:34:56Z
dc.date.issued2024
dc.identifier.issn2296-2360
dc.identifier.issn2296-2360
dc.identifier.otherARTN 1288507
dc.identifier.urihttps://pearl.plymouth.ac.uk/handle/10026.1/22013
dc.description.abstract

Introduction: Literature on parental experiences after childhood critical illness has limited representation from diverse ethnic backgrounds. Parents from global ethnic majority groups have reported worst psychological outcomes and required more social support after childhood critical illness.

Aim: To explore the experiences of Chinese, Malay, and Indian parents in the first six months after Pediatric Intensive Care Unit (PICU) discharge of their child in Singapore.

Methods: Sequential semi-structured qualitative interviews were conducted to collect data from a convenience sample of 28 parents at one month (n = 28) and at six months (n = 22) after their child's discharge from a multidisciplinary PICU. Framework Analysis was adopted as the qualitative analysis strategy. The PICS-p framework was applied a priori in the Framework Analysis.

Findings: Three interdependent domains and seven themes framed the 28 accounts in which ethnically diverse parents reported psychological stressors (PICS-p: emotional health), support received (PICS-p: social health) and practical challenges (transitional health) in the first six months after childhood critical illness. In the emotional health domain, parents were affected by different stressors and had different priorities over their child's survivorship. Only Indian parents reported experiences of stress symptoms, at six months post discharge. Malay parents sought solace from their religion more than Chinese and Indian parents. In the social health domain, parents reported various sources and degree of support received. Familial supports were strong across all groups, while community support was more prominent in Malay as compared to Chinese and Indian parents. A third domain, transitional health, was introduced to capture the difficulties parents faced during the transition from PICU survival to home. Parents from non-Chinese families were more likely to report financial challenges and more involvement of spouses after discharge. Complementary medicine or commercial health products were utilized by Chinese and Malay families.

Conclusion: These findings reveal preferred strategies that parents from a global ethnic employ to address the emotional, social and transitional health impacts of their child's critical illness. Future care delivery may consider tailored care plans, communication strategies, and emotional support in PICUs that address the unique ethnic needs of parents during the critical six-months post their child's illness.

dc.format.extent1288507-
dc.format.mediumElectronic-eCollection
dc.languageeng
dc.publisherFrontiers Media SA
dc.subjectpaediatric intensive care
dc.subjectpsychological outcomes
dc.subjectpaediatric
dc.subjectPost Intensive Care Syndrome-pediatrics
dc.subjectemotional outcomes
dc.subjectsocial outcomes
dc.subjectethnicity
dc.subjecthealth disparity
dc.titleEthnic differences in parental experiences during the first six months after PICU discharge in Singapore: a qualitative study
dc.typejournal-article
dc.typeArticle
plymouth.author-urlhttps://www.ncbi.nlm.nih.gov/pubmed/38250591
plymouth.volume11
plymouth.publisher-urlhttp://dx.doi.org/10.3389/fped.2023.1288507
plymouth.publication-statusPublished online
plymouth.journalFrontiers in Pediatrics
dc.identifier.doi10.3389/fped.2023.1288507
plymouth.organisational-group|Plymouth
plymouth.organisational-group|Plymouth|Research Groups
plymouth.organisational-group|Plymouth|Faculty of Health
plymouth.organisational-group|Plymouth|Faculty of Health|School of Nursing and Midwifery
plymouth.organisational-group|Plymouth|Research Groups|Institute of Health and Community
plymouth.organisational-group|Plymouth|REF 2021 Researchers by UoA
plymouth.organisational-group|Plymouth|Users by role
plymouth.organisational-group|Plymouth|Users by role|Academics
plymouth.organisational-group|Plymouth|REF 2021 Researchers by UoA|UoA03 Allied Health Professions, Dentistry, Nursing and Pharmacy
plymouth.organisational-group|Plymouth|Research Groups|Plymouth Institute of Health and Care Research (PIHR)
plymouth.organisational-group|Plymouth|REF 2028 Researchers by UoA
plymouth.organisational-group|Plymouth|REF 2028 Researchers by UoA|UoA03 Allied Health Professions, Dentistry, Nursing and Pharmacy
dc.publisher.placeSwitzerland
dcterms.dateAccepted2023-12-12
dc.date.updated2024-02-02T15:34:56Z
dc.rights.embargodate2024-2-6
dc.identifier.eissn2296-2360
dc.rights.embargoperiod
rioxxterms.versionofrecord10.3389/fped.2023.1288507


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